I started this layout with a photo that I loved. It is not finished, because the story is not finished. I want to share the journaling with you, to explain why we need your prayers and why I will not be around for several days.
"I used this photo because I loved it. The page did not get finished, because it didn’t have a story to tell. We didn’t realize that two days later, it would have a story. Your dermatologist appointment did not go as planned. We were expecting to hear about how we would laser off the hemangioma between your eyes and the birthmark on your cheek, no big deal. What we were told left us in complete shock and fear. Your birthmark was a congenitive nevis, meaning a mole from birth. BUT it is hairy and abnormal. The doctor showed us a photo of a cancerous mole and your mole, and we could not tell the difference. Your mole will more than likely turn cancerous by the age of 10. If it did turn, we would never know and the mortality rate would be 50%. Everything said after that just turned into a blur, our whole world turned into a blur. You would need surgery to immediately remove the mole. It would have to be cut out because the hair means that the mole is to the fatty layer of skin. The odds of needing to take you to the Main U were a distinct possibility. Your hemangioma was also abnormal. It collapsed and pushed the fatty layer out, so it will never disappear like most do. We left that day in disbelief and with an appointment with a facial trauma plastic surgeon.
Within a week we had some answers. Dr. Portilla could do the surgery in town and as an outpatient procedure. He would also remove the hemangioma at the same time. We were so relieved. The mole will have to be sent to pathology, so we are not in the clear yet, but knowing that we can bring you home right away is comforting!It will honestly be strange to not see you with the marks anymore. We cannot really even imagine what you will look like. We are still scared, but we know that this will be harder on us than on you. We love you. You are our everything, our one and only you."
Ethan's birthmarks have always been so tough on me. People have made horrible and rude comments, and let's face it, its tough when your child looks different and everyone constantly asks "what happened?" The strawberry hemangioma between his eyes was the worst and bothered me the most. I never dreamt that the brown birthmark would actually be a medical concern.
Ethan's surgery is Tuesday morning, very early. Please pray for the surgeons, nurses, and all the medical staff. Please pray for our son and that surgery and the recovery goes smoothly. And please pray for Greg and myself. We are trying to be calm, but inside we are in knots with worry and fear.
From the bottom of my heart, thank you for your prayers and the moment you take to say them. I will post a quick update sometime later this week.